MS Canada is a national organization dedicated to supporting people affected by multiple sclerosis through advocacy, education, research funding, and community programs.
Their work focuses on improving quality of life for individuals and families living with MS, while also advancing research toward better treatments and, ultimately, a cure. MS Canada provides trusted resources, connection opportunities, and support services to help people better understand and manage the impact of MS.
The Sumaira Foundation is an international nonprofit organization dedicated to raising awareness and advancing research for rare neuro autoimmune diseases, including neuromyelitis optica spectrum disorder (NMOSD) and MOG antibody-associated disease (MOGAD).
Founded in 2014 by a patient, the foundation focuses on educating the public and medical community, supporting scientific research, and advocating for improved diagnosis, treatment, and care. It also plays a key role in building a global support network for patients and caregivers through educational programs, community initiatives, and patient-led advocacy efforts.
The Guthy-Jackson Foundation is a leading nonprofit organization dedicated to advancing research, awareness, and treatment for neuromyelitis optica spectrum disorder (NMOSD). It plays a key role in connecting patients, clinicians, and researchers worldwide to accelerate discoveries and improve patient outcomes.
For patients, the foundation offers a wide range of resources, including educational materials about NMOSD, updates on the latest research and clinical trials, and access to expert-led webinars and patient days. It also fosters a strong global community through support networks, patient stories, and events, helping individuals and families feel informed, supported, and connected.
The MOG Project is a nonprofit organization dedicated to supporting individuals affected by MOG antibody-associated disease (MOGAD). It focuses on raising awareness, advancing research, and improving the lives of patients and their families.
The organization provides a range of patient resources, including accessible educational materials about MOGAD, updates on current research, and opportunities to participate in studies and clinical initiatives. It also offers community support through patient stories, virtual events, and peer connections, helping individuals feel informed, supported, and connected throughout their journey.
The Canadian Organization for Rare Diseases (CORD) is a national network that advocates for individuals living with rare diseases across Canada. It works to improve access to timely diagnosis, equitable care, and innovative treatments through policy development, research support, and collaboration with healthcare leaders.
For patients and families, CORD offers educational resources, updates on rare disease policies and initiatives, and opportunities to engage in advocacy efforts. It also connects individuals to a broader rare disease community, helping amplify patient voices and improve awareness and support nationwide.
